17th April is a special date for people suffering from bleeding disorders. The world hemophilia day is observed on this date every year. This day is dedicated to people suffering from hemophilia and other bleeding disorders. This particular date was chosen as it was the birthday of Frank Schnabel, the leader of hemophiliacs who founded the WFH (World Federation of Hemophilia).
This annual event is a great opportunity to increase awareness about hemophilia and other inherited bleeding disorders. In order to assist people interested in organizing world hemophilia day activities and events, the WFH has released educational and promotional materials relating to this year's theme for the world hemophilia day - "Close the Gap". You can access these resources here.
Although there are still a couple of months for the world hemophilia day, preparing in advance is always advisable. Some suggested activities for the world hemophilia day are -
- Join the global World Hemophilia Day 2012 event on facebook to show your support. Invite your friends to this event as well.
- Place the World Hemophilia Day logo on your website and link to www.wfh.org/whd/en. Send a text message or e-mail to friends encouraging them to learn more about bleeding disorders by visiting the WFH website.
- Become a fan of the WFH facebook page and the Blood Relations Blog facebook page. Encourage your friends to visit and ‘like’ these pages. Wear red on World Hemophilia Day; send a memo around your workplace or school and ask your colleagues or classmates to join you, and then post the photos on these facebook pages.
- Copy the Facebook status and profile picture of the World Federation of Hemophilia (WFH) on April 17.
- Update your Facebook status with your plans for World Hemophilia Day and ask your friends to do the same.
- Support the work of the WFH by becoming a member. Visit www.wfh.org for more information.
Together we will "Close the Gap" in treatment and care for sufferers of bleeding disorders across the world.
It is good that all hemophiliac wants to share their happiness amongst them selves.They take care of each other. It is good.
ReplyDeleteThanks for your opinion.
DeleteTHIS BLOG IS VERY USE FULL FOR HEMOPHILIC PATIENTS
ReplyDeleteThanks Abdul...we hope to provide more useful content for people involved in the bleeding disorders community in the coming days.
DeleteI love World hemophilia day cz it raise the visibility and awareness about the hemophilia and the other bleeding disorders. This event is very helpful for hemophilic patients, with this they feel happy and share there happiness. so, To show our support for hemophilic patients everyone need to join this event.
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